Spinal muscular atrophy3 hrs agoSMA newborn screening trial a 'major step forward'Earlier treatment can help children with the condition reach key milestones, a neurologist says.3 hrs ago22 Sept 2026Teen 'inspiring others' congratulated by Prince HarryGeorge, 15, wins the Special Recognition Award at the national 2026 WellChild Awards.22 Sept 202616 Sept 2026Girl, 6, takes on cycle challenge for best friendJessica, from Kent, hopes to raise £2,000 to help her friend Sid's family pay for home adaptations.16 Sept 202627 Aug 2026Newborns to be tested for rare condition in trialThe University of Oxford led study for SMA comes after a campaign by former Little Mix's Jesy Nelson.27 Aug 202610 Aug 2026Parents fear being left behind in screening for rare condition after Jesy Nelson campaignRoutine testing for newborns is being introduced in England and Scotland, but not Wales.10 Aug 202617 Jul 2026Newborn babies in England to be tested for SMAAll newborn babies in England will be tested for the genetic disease spinal muscular atrophy (SMA), as part of a major study.17 Jul 202616 Jul 2026Jesy nelson calls plan to test newborns for SMA a 'victory'All newborn babies in England will be tested for the genetic disease spinal muscular atrophy.16 Jul 202616 Jul 2026Jesy Nelson calls plan to test newborns for life-limiting muscle condition a 'victory'All newborn babies are set to have a heel prick test for Spinal Muscular Atrophy (SMA) in England.16 Jul 202624 Jun 2026Jesy Nelson 'outraged' after MPs debate muscle condition that affects her twinsThe singer says children face a "postcode lottery", as testing for the disease is staggered.24 Jun 2026...
