Spinal muscular atrophy5 days agoParents fear being left behind in screening for rare condition after Jesy Nelson campaignRoutine testing for newborns is being introduced in England and Scotland, but not Wales.5 days ago17 Jul 2026Newborn babies in England to be tested for SMAAll newborn babies in England will be tested for the genetic disease spinal muscular atrophy (SMA), as part of a major study.17 Jul 202616 Jul 2026Jesy nelson calls plan to test newborns for SMA a 'victory'All newborn babies in England will be tested for the genetic disease spinal muscular atrophy.16 Jul 202616 Jul 2026Jesy Nelson calls plan to test newborns for life-limiting muscle condition a 'victory'All newborn babies are set to have a heel prick test for Spinal Muscular Atrophy (SMA) in England.16 Jul 202624 Jun 2026Jesy Nelson 'outraged' after MPs debate muscle condition that affects her twinsThe singer says children face a "postcode lottery", as testing for the disease is staggered.24 Jun 202622 Jun 2026Couple take on peaks for boy with rare conditionGeorgia Bristow, from Loose, says they are "outdoorsy" but have "never done anything like this".22 Jun 202614 May 2026Rare condition drug 'fundamentally changed' boy's lifeClinical bosses approve the treatment for routine and widespread NHS use in England.14 May 202619 Apr 2026Singer appeals after car with medical equipment is stolenJesy Nelson offers a £10,000 reward for the recovery of her car, which had medical equipment inside.19 Apr 202623 Mar 2026Scotland becomes first in UK to test newborns for rare genetic conditionSpinal Muscular Atrophy (SMA) causes progressive muscle weakness and, without treatment, can limit life expectancy to just two years.23 Mar 2026...
